Personal profile
Biography
Associate Professor Jane Desborough (DAppScNursing; GDipMid; MPH, PhD) is a Senior Fellow at the National Centre for Epidemiology and Population Health, Australian National University. She is a mixed methods researcher, who works closely with patients, clinicians and policy makers to conduct research that is responsive to their needs and preferences, and targets quality and outcomes improvement.
Jane holds an ARC Discovery Early Career Researcher Award (DECRA) 2022 for which she is examining the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the OOP costs of chronic disease.
Jane leads the Health Experience and Health Services Research Group in the Centre for Epidemiology, Policy and Practice. Her research team is comprised of academics, clinicians and health care consumers - providing many lenses of expertise to inform her research.
From March 2020 to November 2021 Jane worked on secondment to the Australian Government Department of Health as an Action Researcher alongside the COVID-19 Primary Care Response Group. This work included undertaking rapid reviews and evidence synthesis to inform policy decision making, and description and publication of the COVID-19 policy response for the academic record.
Jane is a registered nurse and midwife, and has worked clinically in a variety of settings for 25 years, including remote area nursing. Before moving to academia, Jane worked as a Senior Policy Officer at the ACT Health Directorate in the Office of the ACT Chief Nurse.
Qualifications
Diploma Applied Science (Nursing); Graduate Diploma Midwifery; Masters in Public Health; PhD Population Health
Research Interests
- Patient, family, carer and clinicians' experiences and perspectives
- Consumer engagement and coproduction research
- Patient enablement
- Primary health care
- Quality measurement in health care
- Knowledge translation
Research student supervision
- Registered to supervise
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Collaborations and top research areas from the last five years
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Time to diagnosis for a rare disease: managing medical uncertainty: A qualitative study
Phillips, C., Parkinson, A., Namsrai, T., Chalmers, A., Dews, C., Gregory, D., Kelly, E., Lowe, C. & Desborough, J., 14 Aug 2024, In: Orphanet Journal of Rare Diseases. 19, 1, 10 p., 297.Research output: Contribution to journal › Article › peer-review
Open Access25 Citations (Scopus) -
Diagnostic delay of sarcoidosis: an integrated systematic review
Namsrai, T., Phillips, C., Parkinson, A., Gregory, D., Kelly, E. & Desborough, J., 2024, In: Orphanet Journal of Rare Diseases. 19, 1, 13 p., 156.Research output: Contribution to journal › Review article › peer-review
Open Access11 Citations (Scopus) -
Changes in general practice use and costs with COVID-19 and telehealth initiatives: Analysis of Australian whole-population linked data
Butler, D., Joshy, G., Douglas, K., Bin Sayeed, M. S., Welsh, J., Douglas, A., Korda, R., Phillips, C., Banks, E., Agostino, J., Lancsar, E., Desborough, J., Hall Dykgraaf, S., Parkinson, A., Soga, K., Chateau, D., Lazarevic, N. & Law, H. D., May 2023, In: British Journal of General Practice. 73, 730, p. E364-E373Research output: Contribution to journal › Article › peer-review
Open Access9 Citations (Scopus) -
Toward Diabetes Device Development That Is Mindful to the Needs of Young People Living With Type 1 Diabetes: A Data- and Theory-Driven Qualitative Study
Brew-Sam, N., Parkinson, A., Chhabra, M., Henschke, A., Brown, E., Pedley, L., Pedley, E., Hannan, K., Brown, K., Wright, K., Phillips, C., Tricoli, A., Nolan, C. J., Suominen, H. & Desborough, J., 2023, In: JMIR Diabetes. 8, e43377.Research output: Contribution to journal › Article › peer-review
Open Access3 Citations (Scopus) -
Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory
Zhou, M., Parkinson, A., Watts, L., Veitch, J., Suominen, H. & Desborough, J., Feb 2026, In: Health Expectations. 29, 1, e70615.Research output: Contribution to journal › Article › peer-review
Open Access
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Applying OCCAMS molecular razor to study the role of EBV in MS pathogenesis
Bruestle, A. (PI), Phan, T. (PI), Andrews, T. (CoI), Ballouz, S. (CoI), Deenick, E. (CoI), Desborough, J. (CoI), Goodnow, C. C. (CoI), Hewitt, A. (CoI), Jackson, K. J. L. (CoI), John, N. A. (CoI), Massey, J. (CoI), Palendira, U. (CoI), Parnell, G. P. (CoI), Parnell, G. P. (CoI), Tscharke, D. (CoI), Yazar, S. (CoI) & Zaunders, J. J. (CoI)
16/08/24 → 31/05/27
Project: Research
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Enhancing safe telehealth for all in high risk consultations: a multiperspective, mixed-methods study
Phillips, C. (PI), Butler, D. (CoI), Christensen, B. (CoI), Desborough, J. (CoI), Hall Dykgraaf, S. (CoI), Macqueen, S. (CoI) & Newman, E. (CoI)
1/07/24 → 30/06/27
Project: Research
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Accredited Cytokine Testing and Deep Immunophenotyping Facility
Randall, K. (PI), Bruestle, A. (CoI), Davies, A. (CoI), Desborough, J. (CoI) & Nolan, C. (CoI)
30/06/24 → 2/03/28
Project: Research
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Characterising and measuring fatigue in progressive multiple sclerosis; a person centered approach
Bruestle, A. (PI), Cherbuin, N. (CoI), Desborough, J. (CoI), Fanning, V. (CoI) & Suominen, H. (CoI)
1/01/24 → 31/03/25
Project: Research
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MRFF - Ketowhistle: Highly accurate point-of-care home-use breath acetone sensor for diagnosing diabetic ketoacidosis
Karawdeniya, B. (PI), Agnihotri, V. (CoI), Desborough, J. (CoI), Fu, L. (CoI), Nolan, C. (CoI) & Wei, S. (CoI)
11/12/23 → 31/12/24
Project: Research