First Nations community-led approaches to Australian healthcare genomics

  • Huebner, Sharon (PI)

    Project: Research

    Project Details

    Description

    This project aims to develop community-led approaches that address key barriers to First Nations inclusion inAustralian healthcare genomics. It will focus on working with communities to evaluate, co-design, and implementculturally appropriate engagement strategies and ethical research practices, including relationship-based consent;cultural integration of genomics; and ethical strategies for long-term management and use of biological samplesand data for clinical and research purposes. Expected outcomes of this project are policy recommendations,contributions to national ethics and protocols guidelines, and the evaluation of educational materials and digitallearning tools aimed at improving genomics literacy and research practices.
    StatusFinished
    Effective start/end date1/02/2213/12/23

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