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Countering ‘the moral science of biopolitics’: Understanding hepatitis C treatment ‘non-compliance’ in the antiviral era

  • David Moore*
  • , Suzanne Fraser
  • , Adrian Farrugia
  • , Renae Fomiatti
  • , Michael Edwards
  • , Elizabeth Birbilis
  • , Carla Treloar
  • *Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)

Abstract

Although new hepatitis C treatments are a vast improvement on older, interferon-based regimens, there are those who have not taken up treatment, as well as those who have begun but not completed treatment. In this article, we analyse 50 interviews conducted for an Australian research project on treatment uptake. We draw on Berlant’s (2007, Critical Inquiry, 33) work on ‘slow death’ to analyse so-called ‘non-compliant’ cases, that is, those who begin but do not complete treatment or who do not take antiviral treatment as directed. Approached from a biomedical perspective, such activity does not align with the neoliberal values of progress, self-improvement and rational accumulation that pervade health discourses. However, we argue that it is more illuminating to understand them as cases in which sovereignty and agency are neither simplistically individualised nor denied, and where ‘modes of incoherence, distractedness, and habituation’ are understood to co-exist alongside ‘deliberate and deliberative activity […] in the reproduction of predictable life’ (Berlant, 2007, p. 754). The analysed accounts highlight multiple direct and indirect forces of attrition and powerfully demonstrate the socially produced character of agency, a capacity that takes shape through the constraining and exhausting dynamics of life in conditions of significant disadvantage.

Original languageEnglish
Pages (from-to)399-417
Number of pages19
JournalSociology of Health and Illness
Volume46
Issue number3
Early online date23 Sept 2023
DOIs
Publication statusPublished - Mar 2024
Externally publishedYes

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