Giving a Voice to Marginalised Groups for Health Care Decision Making

Richard De Abreu Lourenço; Nancy Devlin; Kirsten Howard; Jason J. Ong; Julie Ratcliffe; Jo Watson; Esther Willing; Elisabeth Huynh

doi:10.1007/s40271-020-00456-1

Giving a Voice to Marginalised Groups for Health Care Decision Making

Richard De Abreu Lourenço^*, Nancy Devlin, Kirsten Howard, Jason J. Ong, Julie Ratcliffe, Jo Watson, Esther Willing, Elisabeth Huynh

^*Corresponding author for this work

Research output: Contribution to journal › Comment/debate › peer-review

8 Citations (Scopus)

Abstract

Internationally, there is broader inclusion of the consumer voice in decisions about healthcare resource allocation; initiatives like the Strategy for Patient-Oriented Research (SPOR) in Canada and INVOLVE in the UK focus on expanded consumer representation in forming and enacting health policy [1, 2]. In part, the success of these initiatives will depend on inclusive representation. Representation refects both who is given a voice and whose preferences are captured in health care decision making and policy setting [35]. For marginalised groups (those who are socially excluded, find it difficult to be heard or who researchers struggle to reach), achieving representation is a challenge. Challenges arise in asking the right people the right questions and doing so in a manner that reflects and captures their values.

Original language	English
Pages (from-to)	5-10
Number of pages	6
Journal	Patient
Volume	14
Issue number	1
Early online date	1 Oct 2020
DOIs	https://doi.org/10.1007/s40271-020-00456-1
Publication status	Published - Jan 2021

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AU - Ratcliffe, Julie

AU - Watson, Jo

AU - Willing, Esther

AU - Huynh, Elisabeth

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Giving a Voice to Marginalised Groups for Health Care Decision Making

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