Impact of informal caregiving on older adults' physical and mental health in low-income and middle-income countries: A cross-sectional, secondary analysis based on the WHO's Study on global AGEing and adult health (SAGE)

Sylvie D. Lambert*, Steven J. Bowe, Patricia M. Livingston, Leila Heckel, Selina Cook, Paul Kowal, Liliana Orellana

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

49 Citations (Scopus)

Abstract

Objectives A high proportion of care stemming from chronic disease or disability in low-income and middle-income countries is provided by informal caregivers. The goal of this study was to determine the level of burden experienced by these caregivers, explore associated factors and assess whether caregivers' and non-caregivers' health differed. Design and setting This cross-sectional study was a secondary analysis of data on caregivers' burden, health and health risk factors in Ghana, India and the Russian Federation collected as part of the WHO's Study on global AGEing and adult health (SAGE) Wave 1. Participants Caregivers in Ghana (n=143), India (n=490) and Russia (n=270) completed the measures. Outcome measures Factors associated (ie, demographics and caregiving profile variables) with burden were explored among caregivers. Then, quality of life (QOL), perceived stress, depression, self-rated health (SRH) and health risk factors were compared between caregivers and matched non-caregivers (1:2). Results The largest caregiving subgroups were spouses and adult children. Caregivers mostly cared for one person and provided financial, social/emotional and/or physical support, but received little support themselves. Burden level ranged from 17.37 to 20.03. Variables associated with burden were mostly country-specific; however, some commonality for wealth, type of care and caregiving duration was noted. Caregivers with a moderate or high level of burden reported lower QOL and higher perceived stress than those experiencing low burden. Caregivers reported lower QOL and SRH than non-caregivers. Conclusion Given the lack of support received and consequences of the burden endured by caregivers, policy and programme initiatives are needed to ensure that caregivers in low- and middle-income countries can fulfil their role without compromising their own health.

Original languageEnglish
Article numbere017236
JournalBMJ Open
Volume7
Issue number11
DOIs
Publication statusPublished - 1 Nov 2017
Externally publishedYes

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