TY - JOUR
T1 - Patient and Caregiver Priorities for Medication Adherence in Gout, Osteoporosis, and Rheumatoid Arthritis
T2 - Nominal Group Technique
AU - Kelly, Ayano
AU - Tymms, Kathleen
AU - de Wit, Maarten
AU - Bartlett, Susan J.
AU - Cross, Marita
AU - Dawson, Therese
AU - De Vera, Mary
AU - Evans, Vicki
AU - Gill, Michael
AU - Hassett, Geraldine
AU - Lim, Irwin
AU - Manera, Karine
AU - Major, Gabor
AU - March, Lyn
AU - O’Neill, Sean
AU - Scholte-Voshaar, Marieke
AU - Sinnathurai, Premarani
AU - Sumpton, Daniel
AU - Teixeira-Pinto, Armando
AU - Tugwell, Peter
AU - van den Bemt, Bart
AU - Tong, Allison
N1 - Publisher Copyright:
© 2019, American College of Rheumatology
PY - 2020/10/1
Y1 - 2020/10/1
N2 - Objective: This study aimed to identify and prioritize factors important to patients and caregivers with regard to medication adherence in gout, osteoporosis (OP), and rheumatoid arthritis (RA) and to describe the reasons for their decisions. Methods: Patients with gout, OP, and RA and their caregivers, purposively sampled from 5 rheumatology clinics in Australia, identified and ranked factors that they considered important for medication adherence using nominal group technique and discussed their decisions. An importance score (IS; scale 0–1) was calculated, and qualitative data were analyzed thematically. Results: From 14 focus groups, 82 participants (67 patients and 15 caregivers) identified 49 factors. The top 5 factors based on the ranking of all participants were trust in doctor (IS 0.46), medication effectiveness (IS 0.31), doctor’s knowledge (IS 0.25), side effects (IS 0.23), and medication-taking routine (IS 0.13). The order of the ranking varied by participant groupings, with patients ranking “trust in doctor” the highest, while caregivers ranked “side effects” the highest. The 5 themes reflecting the reasons for factors influencing adherence were as follows: motivation and certainty in supportive individualized care; living well and restoring function; fear of toxicity and cumulative harm; seeking control and involvement; and unnecessarily difficult and inaccessible. Conclusion: Factors related to the doctor, medication properties, and patients’ medication knowledge and routine were important for adherence. Strengthening doctor–patient trust and partnership, managing side effects, and empowering patients with knowledge and skills for taking medication could enhance medication adherence in patients with rheumatic conditions.
AB - Objective: This study aimed to identify and prioritize factors important to patients and caregivers with regard to medication adherence in gout, osteoporosis (OP), and rheumatoid arthritis (RA) and to describe the reasons for their decisions. Methods: Patients with gout, OP, and RA and their caregivers, purposively sampled from 5 rheumatology clinics in Australia, identified and ranked factors that they considered important for medication adherence using nominal group technique and discussed their decisions. An importance score (IS; scale 0–1) was calculated, and qualitative data were analyzed thematically. Results: From 14 focus groups, 82 participants (67 patients and 15 caregivers) identified 49 factors. The top 5 factors based on the ranking of all participants were trust in doctor (IS 0.46), medication effectiveness (IS 0.31), doctor’s knowledge (IS 0.25), side effects (IS 0.23), and medication-taking routine (IS 0.13). The order of the ranking varied by participant groupings, with patients ranking “trust in doctor” the highest, while caregivers ranked “side effects” the highest. The 5 themes reflecting the reasons for factors influencing adherence were as follows: motivation and certainty in supportive individualized care; living well and restoring function; fear of toxicity and cumulative harm; seeking control and involvement; and unnecessarily difficult and inaccessible. Conclusion: Factors related to the doctor, medication properties, and patients’ medication knowledge and routine were important for adherence. Strengthening doctor–patient trust and partnership, managing side effects, and empowering patients with knowledge and skills for taking medication could enhance medication adherence in patients with rheumatic conditions.
UR - http://www.scopus.com/inward/record.url?scp=85091666233&partnerID=8YFLogxK
U2 - 10.1002/acr.24032
DO - 10.1002/acr.24032
M3 - Article
SN - 2151-464X
VL - 72
SP - 1410
EP - 1419
JO - Arthritis Care and Research
JF - Arthritis Care and Research
IS - 10
ER -