People Living with Psychotic Illness: An Australian Study 1997-98

The report presents the main findings gathered through a census of 3,800 Australians aged 18-64 years of age with psychotic disorders. They were drawn from people who attended mental health services in catchment areas in the Australian Capital Territory, Queensland, Victoria and Western Australia. In addition an in-depth interview was conducted with 980 of the respondents.

From the study we have attained a lot of important information that will guide policy and programs. These include the fact that between 4 and 7 persons per 1,000 adults resident in urban areas are in contact with mental health services during any given month because of symptoms of psychotic disorder. The majority of psychotic illnesses begin in early adulthood. Schizophrenia and schizoaffective disorders account for over 60% of the prevalence and men and women are equally affected. For a high proportion of survey participants the course of the illness had been continuous without remission for an average of 15 years after the first onset of psychotic symptoms.

The study clearly identifies the fact that psychotic disorders represent a major public health challenge in Australia today. It highlights the high burden of ill-health and disability experienced by people with psychotic disorders throughout their lives. Only a minority of people had attained a level of functioning and wellbeing that is commensurate with a good quality of life. The impact of psychotic disorders is experienced in terms of symptoms (duration and distress), compromised daily living and life achievement activities (particularly in relation to education and employment) and dependency as a consumer of welfare and support services. The additional impact on the homeless is further cause for concern.

This report highlights the need to come together to strengthen partnerships across all service providers, particularly to better provide accessible and flexible accommodation, employment, legal aid services, vocational training and community-based rehabilitation services, for this disadvantaged group in the community. More importantly, it stresses the need for continued efforts by all Australians to lessen the suffering, particularly the pain of rejection of those with mental illness, so that all Australians enjoy the high quality of life we have in this country.