Abstract
Aims: To explore patient perspectives regarding experiences with rehabilitation and physical activity, including accessibility, acceptability and satisfaction. To understand patient values, priorities and prefer-ences when performing exercise for health maintenance in the con-text of chronic kidney disease (CKD) and frailty.
Background: Understanding the patient perspective of frailty is critical to offering holistic patient-centred care. Rehabilitation strategies for patients with advanced CKD and frailty are limited in their ability to overcome patient-perceived barriers to participation, resulting in high rates of drop-out and non-adherence. Studies demonstrate that patient activation improves clinical outcomes, enhances patients and staff satisfaction, and may reduce healthcare costs.
Methods: Participants with advanced CKD and Fried Frailty pheno-type and their caregivers were invited to participate in in-depth inter-views or focus group workshops with an attending accredited exercise physiologist to gain a rich description of key informants' experiences of frailty and rehabilitation goals and preferences. Inter-views were recorded, transcribed, and coded for meaningful concepts and analysed using inductive thematic analysis using a constant com-parative method of data analysis employing Social Cognitive Theory.
Results: Two focus groups (N = 4, N = 2), seven individual interviews and three caregiver interviews were analysed prior to saturation of themes. Participants were experienced in rehabilitation and recounted the value of peer-to-peer education, the camaraderie of socialisation and the benefit of feedback for maintaining motivation. Dialysis patients described the commodity of time and the burden of unre-solved symptoms as barriers to participation. Participants reported difficulty envisioning strategies for frailty rehabilitation, maintaining a focus on the immediate and avoidance of future uncertainty.
Conclusions: Frailty rehabilitation efforts CKD should leverage shared experiences, address comorbidity and symptom burden and focus on goals with normative value.
Background: Understanding the patient perspective of frailty is critical to offering holistic patient-centred care. Rehabilitation strategies for patients with advanced CKD and frailty are limited in their ability to overcome patient-perceived barriers to participation, resulting in high rates of drop-out and non-adherence. Studies demonstrate that patient activation improves clinical outcomes, enhances patients and staff satisfaction, and may reduce healthcare costs.
Methods: Participants with advanced CKD and Fried Frailty pheno-type and their caregivers were invited to participate in in-depth inter-views or focus group workshops with an attending accredited exercise physiologist to gain a rich description of key informants' experiences of frailty and rehabilitation goals and preferences. Inter-views were recorded, transcribed, and coded for meaningful concepts and analysed using inductive thematic analysis using a constant com-parative method of data analysis employing Social Cognitive Theory.
Results: Two focus groups (N = 4, N = 2), seven individual interviews and three caregiver interviews were analysed prior to saturation of themes. Participants were experienced in rehabilitation and recounted the value of peer-to-peer education, the camaraderie of socialisation and the benefit of feedback for maintaining motivation. Dialysis patients described the commodity of time and the burden of unre-solved symptoms as barriers to participation. Participants reported difficulty envisioning strategies for frailty rehabilitation, maintaining a focus on the immediate and avoidance of future uncertainty.
Conclusions: Frailty rehabilitation efforts CKD should leverage shared experiences, address comorbidity and symptom burden and focus on goals with normative value.
| Original language | English |
|---|---|
| Pages (from-to) | 48-48 |
| Journal | Nephrology |
| Volume | 28 |
| Issue number | S2 |
| DOIs | |
| Publication status | Published - Aug 2023 |
| Event | 58th Annual Scientific Meeting of the Australian and New Zealand Society of Nephrology (ANZSN) 4–6 September 2023 - Te Pae Christchurch Convention Centre, Ōtautahi Christchurch, New Zealand Duration: 4 Sept 2023 → 6 Sept 2023 Conference number: 58 https://onlinelibrary.wiley.com/toc/14401797/2023/28/S2 |